Autism Genetic Resource Exchange
Thus, selfadvocates’ bête noire, Cure Autism Now, has sponsored the creation of an Autism Genetic Resource Exchange (Silverman 2008a), the “world’s first collaborative gene bank for autism.”
The Autism Genetic Resource Exchange (AGRE) is one of the pioneers in autism research today. Since its inception in 1997, AGRE has fueled many of the breakthroughs in autism research. AGRE is the largest private, open-access repository of clinical and genetic information dedicated to help autism research. Used by researchers around the world, AGRE enables an unlimited number of scientists to join in the search for the factors that influence autism – discoveries that will lead us to more effective treatments, prevention, and possibly a cure for autism.
Currently, there are more than 150 research groups worldwide that are using the AGRE resource. With over 2,000 families in our database, AGRE has been cited in more than 165 science journals since the first publication in 2001.
As AGRE moves in a new direction, we are distinguishing ourselves as a Data Coordinating Center (DCC) by collaborating with outside researchers to receive de-identified data and biomaterials to enhance the AGRE resource. In our role as a DCC, we have discontinued our in-home data collection, while continuing to expand our resource with collaboration data and to make it available to researchers worldwide.
Go to AGRE's official website: