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Phenomenology of the Locked-In Syndrome: an Overview and Some Suggestions, an article by Vidal

31/10/2018

Abstract


There is no systematic knowledge about how individuals with Locked-in Syndrome (LIS) experience their situation. A phenomenology of LIS, in the sense of a description of subjective experience as lived by the ill persons themselves, does not yet exist as an organized endeavor. The present article takes a step in that direction by reviewing various materials and making some suggestions. First-person narratives provide the most important sources, but very few have been discussed. LIS barely appears in bioethics and neuroethics. Research on Quality of Life (QOL) provides relevant information, one questionnaire study explores the sense of personal continuity in LIS patients, and LIS has been used as a test case of theories in “embodied cognition” and to explore issues in the phenomenology of illness and communication. A systematic phenomenology of LIS would draw on these different areas: while some deal directly with subjective experience, others throw light on its psychological, sociocultural and materials conditions. Such an undertaking can contribute to the improvement of care and QOL, and help inform philosophical questions, such as those concerning the properties that define persons, the conditions of their identity and continuity, or the dynamics of embodiment and intersubjectivity.

Neuroethics is a forum for interdisciplinary studies in neuroethics and related issues in the scienc...

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Vidal, F. Neuroethics (2018). https://doi.org/10.1007/s12152-018-9388-1

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Published in 14/11/2018

Updated in 19/02/2021

All events in the topic Other works, books and talks by Vidal and Ortega:


01/02/2009 (Aprox)Brainhood, Anthropological Figure of Modernity, by Fernando VidalBrainhood, Anthropological Figure of Modernity, by Fernando Vidal
01/01/2011 (Aprox)Neurocultures: Glimpses Into an Expanding Universe, by Fernando Vidal and Francisco OrtegaNeurocultures: Glimpses Into an Expanding Universe, by Fernando Vidal and Francisco Ortega
15/06/2011La neuroesthétique, un esthétisme scientiste, an article by Fernando VidalLa neuroesthétique, un esthétisme scientiste, an article by Fernando Vidal
15/08/2010The Moral Authority of Nature, edited by Lorraine Daston and Fernando VidalThe Moral Authority of Nature, edited by Lorraine Daston and Fernando Vidal
03/07/2017Being Brains: Making The Cerebral Subject, by Fernando Vidal and Francisco OrtegaBeing Brains: Making The Cerebral Subject, by Fernando Vidal and Francisco Ortega
06/01/2012Neuroaesthetics: Getting Rid of Art and Beauty, reviewed article by Fernando VidalNeuroaesthetics: Getting Rid of Art and Beauty, reviewed article by Fernando Vidal
12/01/2011The Sciences of the Soul: The Early Modern Origins of Psychology, by Fernando VidalThe Sciences of the Soul: The Early Modern Origins of Psychology, by Fernando Vidal
10/01/2012L'expérience mélancolique au regard de la critique, an afterword by Fernando VidalL'expérience mélancolique au regard de la critique, an afterword by Fernando Vidal
14/08/2007Miracles, Science, and Testimony in Post-Tridentine Saint-Making, by Fernando VidalMiracles, Science, and Testimony in Post-Tridentine Saint-Making, by Fernando Vidal
01/10/2013Prospero Lambertini's On the Imagination and Its Powers, by Fernando VidalProspero Lambertini's On the Imagination and Its Powers, by Fernando Vidal
17/12/2013Corporeality, Medical Technologies and Contemporary Culture, a book by Francisco OrtegaCorporeality, Medical Technologies and Contemporary Culture, a book by Francisco Ortega
01/06/2019Brazilian edition of Being Brains
05/04/2019 • 19:00:00Neurociências: Não somos o nosso cérebro?, a talk by Ortega